Our Congenital Heart Warrior!

Our Congenital Heart Warrior!
Rockin her Red!

Wednesday, November 17, 2010

Pre-Glenn Cath

We went in for our pre-Glenn cath yesterday. They found one collateral that they coiled to prevent complications after her Glenn but it wasn't giving her in problems now. She did fantastic through the study but afterwards starting having desaturations into the 50-60s. She got really fluid overloaded in the cath lab but besides looking like marshmellow baby she still looked great but just wasn't holding her sats up. We were on and off of Oxygen overnight but have managed to stay off of it most of the night. Our chest xray looks good though so after consulting with the ICU team we have decided to go home. I will say that one of the perks of both of us being the kind of nurses we are is that people generally give us the benefit of the doubt that we can handle any problems we have with her. With that being said, I mean most people except some doctors who feel like because I don't have male parts I can't possibly know what I am talking about. Let us not even mention the fact that mommy actually has more pediatric AND cardiac experience than daddy- I'm just a nervous mother...huh. I guess he never heard of a mother's instinct...not to mention 6 years of ICU experience! So...we just got our discharge orders and are ready to go home. Daddy is changing her clothes for the second time today (first time she threw up and this time she peed all over them) and we are packing up our entire cart full of stuff that we had to bring for our 24 hour stay.
In the meantime, Hunter came home with a cold a few days ago. Yesterday Maci & I started getting sick, and today Daddy is not feeling so hot! Yay for us. Thank goodness Addy has had her Synagis shot already, and will get her next one tomorrow. Hunter is the only one in the house who has not had his flu shot but it's coming. I guess we are all quarantined to our room for the next few days in hopes that Addy doesn't get sick also. Even a cold could be bad news bears for Addy and put her back in the hospital. We are going to stop on our way home from the hospital to get one of those nifty battery powered nasal aspirators and some simply saline just in case. None of those flimsy blue bulb syringes for us, we need the true ICU style stuff to keep her at home at all costs!
So I guess even though there were a few ups and downs overnight, we have gotten off fairly easy this time as well. Our Glenn is tentatively planned for December 21st so we will keep everyone updated.

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