We are now 72 hours post op Glenn. Addy is doing really well and ahead of schedule for going home. She still has her chest tube but the output is minimal so it will most likely be pulled out tomorrow. After that, we will have to stay 24 hours more and we will be discharged as long as she has no complications! As with the Norwood, she has sailed through this surgery with flying colors! Her perfusion is great and her breathing is comfortable.
Our biggest challenges right now are pain management. It is definately harder now than when she was a newborn and did not know life without pain. Also, all of the people in the hospital that come in and touch her I think scare her so it is much more difficult to be able to leave her. As a newborn she slept all the time so she scarcely knew we were there but now I cannot bear to leave her even to run necessary errands if she is awake. Her being the very active child that she is probably makes her pain a little worse since she doesn't just lay still anymore. We are giving her round the clock Tylenol and Oxycodone to help with the pain and for the most part it is well controlled except for a few breakthrough episodes.
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