So, we have been without the tube since Thursday afternoon after Addy's appointment. Thursday she didn't seem to notice a difference, she got most of her fluid for that day. Friday I went to work so Daddy was left at home with Addy & Maci. Heath hurt his back this week so on second thought this was probably not the best idea to leave her with him by himself on the first day of the wean. He can pick her up but it is difficult, and he is still in a good bit of pain. He has an appointment next week to get it checked out, as well as some bone changes in his hip that showed up on unexpectedly on an xray.
Friday morning she didn't take much by mouth and by 11 am she had cried for 2 hours straight and was refusing to eat anything, bottle or food. Heath finally broke down and put the tube back in and gave her a few ounces. That seemed to satisfy her and then she fell asleep and took a nap. That afternoon she took a few more ounces but didn't eat great, by 3 or 4 that afternoon she had pulled her tube out again. This time he didn't put it back in and just let her PO what she would take. By the time I got home she was in a better mood and eating a little better. I think for Friday her total intake was about 12 to 15 oz, 3 was by tube.
So day 2 of our "wean"....just to clarify we had been letting her go sometimes without tubing the rest of her daytime feeds occasionally througout the last few weeks but had been hesitant to really "wean" until we got our clearance and cut her lasix back to once a day....anyway, starting at 1:30am she started eating today. This is the first time that I think Addy has ever woken up in the middle of the night since we brought her home to eat on her own. We have always woken her up when she would have otherwise slept. She took 3 oz at 1:30, 1oz at 5:00am, and 3oz at 9:30am. This feeds have been on her cues for the most part, when she refused the bottle we did not push it. Heath and I went to see Dave Ramsey speak today so she was with Grandma and Grandpa for the day. We have always said that it just seems like Addy doesn't like milk (especially since she will suck down pear juice from the bottle) but we have never changed her formula that we are fortifying her breast milk with. My mom finally decided she was going to do some research because she thinks it is because Addy doesn't like the Goodstart taste...it does smell like sour milk or vomit, either way it's nasty. So she found that the only formula that the ingredients started with corn syrup was the Similac Sensitive...I'm not sure what the other formula's first ingredient was but she says this one was different. So mom bought a can and tried it with her today. Honestly I dont' know if it's the formula or that her hunger drive has finally kicked in but she ate better today overall than she ever has. She took 8 more oz between when I dropped her off at 11am and 6pm. Then, when we got home she took 4.5 more oz for me at home! She took the whole thing without any coaxing or fussing or distractions! I think this is the most she has ever taken voluntarily while she is awake so I am really excited! Today was just the beginning so who knows how she will do tomorrow but I am optimistic. It is late now and she is still in their playing & fussing instead of sleeping so I will update more the next few days.
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