Present Day

We are currently waiting on Addy to have her pre-Glenn cath on November 16th. They will look at her pressures and decide if she needs her next surgery sooner (not so good) or if she can wait until the middle of December when she is 4 months old. If she flies through the Glenn surgery like her Norwood, maybe we will actually be able to stop holding our breathe waiting for something to go wrong for awhile. Every day when I look at her I wonder if she is going to be here for one more day, week, month, or year. The fear that our baby girl is not going to make it through all of this is sometimes crippling. Her dad and I depend a lot on each other in these times and I thank god that our marriage has remained strong so far. Her brother, Hunter, and sister, Maci, have probably adjusted better than anyone. The simplicity of chlidren is amazing sometimes in their total faith that everything will be ok. It's kind of funny sometimes when other children ask what Addy's feeding tube is and her 4 year old sister replies "that's her tube she eats through" as though it is the most natural thing in the world and why didn't they know that. To them- daily medications, weekly doctors visits, and feeding tubes are perfectly normal and are no reason why they shouldn't love on their baby sister same as any other child. God love them...