5 days before the Glenn surgery

We were admitted to 6c tonight because Ms Addy has not been behaving herself lately. Over the last month she has progressively had to work a little harder to do her normal activities. She doesn't seem to want to eat as much as she used to but we mostly have attributed that to the fact that we are pumping so much into her every 3 hours around the clock. Overall though, her growth has been great and weighed in at a whopping 13 lbs 2 ounces this week. The subtle changes we have noticed are not unexpected as she grows closer to needing her Glenn surgery.

Monday when we saw Dr Kavanaugh she couldn't feel her pulses quite as well and she was working a little harder to breath so that bought us an extra echo, which looked great. Over the last two days though she has just not quite been herself. She is napping much more and does not want to eat anything by mouth at all. Her oxygen saturations are dipping less than 75% which we don't like too much. She is more dusky and her hands and feet are cool and clammy pretty often. From Monday to today we only gained 1 oz so that would not have made her gain enough even by next week. So of course, as Dr Kavanaugh says, "If she does not look perfect, she comes to stay with us"....so here we are.

Of course since we have been here Addy has done nothing but charm everyone with her adorable smile and good nature. We are here for the night so far but if tomorrow nothing has changed and we have no answers we may be here until her surgery. We really didn't want to stay all weekend but we will do whatever has to be done. At this point Heath and I are both ready to get this surgery over with so we can quit living on pins and needles associated with being between the Norwood and Glenn. Addy is telling us that she is as ready as we are. Although on one hand we hate that we will be in the hospital on Christmas, if all goes well it will be like a Christmas present to us to have her doing better! Hunter and Maci will be gone until Christmas morning and then we will do a "Santa" at home with them and at the hospital with her. We have so many good friends and family that care about her that we are very fortunate. Addy is very loved and I know in my heart that God has special plans for her and our family. I will keep everyone updated as we find out new information.