We have a bug! :(

Our cath has been moved up to October 5th. Hopefully at this time the cardiologist will do something with that L-PA so that she doesn't have to work so hard to play & breath. However, Addy likes to keep us on our toes... we thought Addy was teething...well actually she is. But it looks like after 4 days of watching her, she also has some sort of respiratory virus. I have watched her sats of the last 2 days while she plays (before she really got sick) and they were only running 60-75%. This is not good for her. The minimum her sats should be is 75%, although most of the time she should be 80-85%. I spoke to her cardiologist today and we have an appointment with her PCP in the morning. She hasn't eaten or drank too well in the last few days. The problem with Addy getting a virus is much more complex than a normal child. When your heart is already working harder, you don't really need or want a virus to make it work harder. Also, when she is working harder to breath, the vessels (that are already small) going to her lungs are affected, hence she has less reserve before she gets into respiratory trouble. She has been quite much more out of breath the last few days. I truly hope that when we wake in the morning and go to the PCP, she makes me look like a fool by acting just fine. Her cardiologist and I agreed to give her through the weekend to get over her illness, and we will re-evaluate her sat & activity intolerance issue next week (if we don't wind up in the hospital before then). If we still feel that she is progressing in her out of breathness, with low sats, her date will be moved up again to the next week or so. For now, I will continue to post until I know a more definitive plan. It's really not up to us, Addy drives this boat!